You are not alone

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In recent months I've blogged about my depression and anxiety, my diagnosis as being on the Asperger's spectrum, and beginning new journeys.  And as I began packing and the sorting of my physical life, I've done the same with my mental life.  And I realized that I keep giving...this demon, this darkness, this despair, whatever you want to call it more power than it deserves because I haven't talked about it.  Not as much as I could have and not as much as I should have.  So I'm going to change that now.

I don't want to tell the whole story here, in part because some of it is still being written, and in part because this just isn't the right forum for all of it.  One day perhaps...I've lived with depression and anxiety all of my life.  I didn't know that's what it was called nor was I ever formally diagnosed with it until two years ago this August.  While it bothered me a few times a year, I could feel it coming and prepare myself and have it go on after a week or so.  Two years ago though it came and it stayed and it didn't go away.

I began seeing a counselor who has helped me more than they will ever know.  I've taken medication that has helped.  I've sought advice from friends, coworkers, and complete strangers some of which was helpful and some of which was not.  I hurt people that I care about and they hurt me in return.

I've been dealing with a bullying situation for quite some time now, where a person that I trusted threw everything that I had told them back at me.  That I hadn't progressed as much as they wanted with my depression.  That I needed fat clothes.  That I needed to rethink my career because I wasn't cut out to be a librarian anywhere.  That they wouldn't give me a reference.  And more.  Things that were more cutting and hurtful than anything else I've ever been told before.

And now I get to the part where I can count on one hand how many people know what I'm about to say.  Towards the end of April I came as close as I've ever come to breaking completely.  I was so distraught over some things that were going on that I composed an email that I was going to send out to a group of people.  Before I did so I shared it online, in a private place to ask what they thought.  And the people that responded thought it sounded like a suicide note.  It wasn't meant to be that, but...at the same time it was.  I wasn't looking to cause harm to myself or anything like that, but I didn't want to be around anymore.  I wanted to just vanish.  And be gone.  A handful of folks reached out to me and one in particular kept messaging me until I called my counselor, went to see them, and then got back.  And then kept touch with me over the next few weeks to see how I was and to help me out.  I took time off to get my head back in place as much as I could and made plans to how to improve my situation.

And we come to the present.  I'm feeling better, but still struggling.  Not what I was a few weeks ago, but there are still days that are rough and hard.  But there have been people that have continued to stand by me and help me when I need it.  To remind me that I am not alone.  So that in turn I can help remind others that they are not alone.

The world keeps spinning and I know that there are people that will sit with me and say nothing other than they are there.  And that I am not alone.

Where to go from here?

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“Be the change you wish to see in the world.” Mahatma Gandhi

I've heard that quote so many times it seems like one day it's just going to appear as a tattoo on my body.  It's a great quote isn't it though?  You want things to change in the world? Go out and show them how.  And when I started thinking about this blog post, and how I wanted to provide an update to my last post about my diagnosis with Asperger's, that quote popped into my head.  I could even hear different friends, coworkers, random strangers say it to me.  And I realized something about the quote...it's a double edged sword in it's meaning.  It tells us to go out and change the world, by leading by example.  And that's both a good and a bad thing.  Because think about the people that you know and encounter, if you suddenly start living you life differently, exemplifying what you want them to see, to be accepting of you as you are...how are they to react?  Some of them will stand by you and hold you up; some will be there for you, but express worry about how others will view you; some will ignore you; and some will tear you to pieces for being different.

And so...I started thinking, what do I want the world to see about me.  How do I want them to perceive me?  And I Googled the quote, to make sure I had it right, and I discovered...I don't.  Gandhi didn't say those words, at least not like that.  What he said was:

“If we could change ourselves, the tendencies in the world would also change. As a man changes his own nature, so does the attitude of the world change towards him. ... We need not wait to see what others do.”  (via: http://www.nytimes.com/2011/08/30/opinion/falser-words-were-never-spoken.html)

So...that's a bit different isn't it?  At least how I read it.  It isn't that the world changes around what we do, it's that how we perceive the world changes towards us.  The world may still treat us the same way, but if we change ourselves, if we adjust how we approach the world, then our feelings towards it will change.  And that last little part..."We need not wait to see what others do."  That's what struck me the most.  Stop waiting for others to put themselves out there to guide us and tell us what to do, and instead take the first step.

So, in my last post, I took the first step to a new path in this journey and I laid out that I was diagnosed as being on the Asperger's spectrum last December and what it's like for me.  Since that post I've gotten advice from a lot of different people that was all across the board.  And most of the people were genuinely trying to help me out, that were worried about me and my future, and just about me in general.  All good things, but I struggled with aspects of what they were telling me, and that's why I started thinking about the quote.  Because some of them told me to be the change that I want to see.  And once I saw the original quote, everything in this post clicked.

I am changing how I see the world.  I am changing how I approach it.  They may be small changes.  They may be big changes.  But they are the changes that I choose.  And the first of those changes is.  I am me.   I am most comfortable, most happy, most at ease when I am not trying to fit into a traditional mold or follow the path that others have taken.  I hear the drummer and I march to my own beat, with all of my weird ticks, tendencies, and strange habits that I've developed over the years.  The biggest change to make, is that I am job hunting again.

Don't get me wrong, my library is great, but it is not where I fit and if I'm honest with myself, I've known that for a while.  I am looking for a library that wants a librarian that thinks outside the box, that is slightly eccentric, that is honest, and that can work outside the traditional mold.  I am that librarian, regardless of the position, I am creative, I am passionate, and I am innovative.  I play well with others, I work independently, and I forge new paths.  If you hire me, if you let me be me, then I promise to make that position awesome and to spread it to the rest of the library.  If you want a librarian like this, then drop me a line.

I am taking a stand.  I am forging a path that is mine and I am trusting my instincts.  Also, just because this is on my play list, I leave you with this video, Sara Bareilles--Brave:

 

I am...

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So we all have stories to tell.  Stories that define us, that make up who we are, that describe us...and everything else in between.  I've written randomly in the past about part of my story, most recently talking about my battle with depression/anxiety and my thoughts on bullying, and random other bits and pieces.  With my 2013 end of the year post I mentioned that I had recently had another diagnosis that I wasn't ready to discuss then.  Now though...I'm ready to share the information widely (had to wait on a few other things first.)  It's another part of my story.

Although I've never written about it before I was diagnosed early on in my life with ADD, and of course I've blogged about part of my battle with depression and anxiety.  And if you've met me in real life you'd be apt to describe me as the quite, shy, quirky, but mostly nice dude that could probably speak up a bit more cause he's pretty smart.  That's the way I've been described all my life.  But...I never felt like it described me right.  Growing up I knew that I thought differently than everyone else.  I could never describe it or put it in words, but I knew I didn't think like everyone else around me. So I just went with it.  I did things to emphasize that I was different, that I was me, and I didn't care what anyone else though. And it worked for the most part. Sure I had to conform to rules for some jobs, but overall I could just be me and I still had the things that I wanted. I'd get the job done my way and no one was bothered by my quirks. I had friends that hung out with me and would occasionally make allowances for my weirdness.  That all changed a good bit when I started my first professional job.  It wasn't bad though and I could make it. And then in the summer of 2012 the depression/anxiety hit like a ton of bricks and it don't go away.  I could almost get back to an even keel, but there were situations that I kept encountering that just made me feel lost and confused no matter what I tried.  And a lot of the advice I got from so many different people, some meaning well and others not so much, just didn't click or fit for me and just added to everything else that I was feeling. That something was wrong with me, because I couldn't match what they did.

Then last spring I had the chance to visit a friend and they were talking to me about one of their kids, and something clicked.  I kept thinking the way they were describing their child...they were describing me.  Having to watch people to see how to fit into groups, what they did to get invited into conversations, a lot of things just...matched.  And in December I was diagnosed as being on the Asperger's spectrum.  And a lightbulb went off in my head.  Lots of things that hadn't made sense growing up, things that couldn't be described by just being shy or ADD...the pieces finally fit.  Why I couldn't figure out how to talk to people, why I do poorly in some social settings, why I say things that violate "societal norms," all of it finally made sense.  When I told some people their response was "I would never have pegged you for being on that spectrum" and others were "Yeah I started to think that a couple of years ago" (thanks I think?)

If you read the Wikipedia link above (yes wikipedia provides a good overview) you can see that Asperger's is a broad ranging spectrum that is part of a larger scale of Autism Spectrum Disorders, which is why some people were surprised when I told them that I'm on it.  For me, I fall somewhere in the middle of the Asperger's spectrum.  Some of the traits/characteristics that apply to me:

• I'm not the best at social interactions.  95% of the time I have no idea how to start a conversation with someone new. My brain just can't figure it out so as a coping mechanism I'll try to talk about something that I like, with varying degrees of success.  Once I get to know someone and learn what they like I can start conversations, but....they're going to be on the topics that I know that person likes, which can get old after a while.  If someone else starts the conversation though, I'm generally OK.
• As part of this I also tend to use repetitive phrases, a coping mechanism I developed to be able to fit into conversations. Like saying "I'm tired" a lot if I'm responding to how I'm doing.
• Another part of this...I don't always say or ask the right thing in social interactions.  Nothing malicious, just questions that one shouldn't ask, like asking if someone is pregnant because they just announced their engagement and were out sick for a few days.  Can't explain why, but that's just where my brain goes.
• I don't do well in crowded spaces. If I'm with someone I can control it a bit, but being on a plane or movie theater or conference where someone sits right next to me is...uncomfortable 
• I don't do well with nonverbal communication or nonvoiced expectations.  This crops up on projects and what not where other people get the sign that things should be done a certain way, just because...I miss it.  Or mistake it for something else.  As for the nonvoiced expectations, I have to ask questions or clarifications for things that may be obvious to others.

This post from CNN.com, written by a father of a child with Asperger's and someone that talks about hiring people with Asperger's, resonated with me on so many levels and just fits...me.

So needless to say all of this, has impacted my life, both personal and professional.  And it's created some unexpected challenges in a part of my life that I've been working through lately, which has made this the worst start to a year I've ever had.  And...yeah.  And yes this is only part of the story. I may blog more about it later, I don't know. I'm still figuring out where I fit into all of this, but things are getting a bit easier now that I know a name for it.

But these things aren't all of me. They're a part of me.  The shape how I view and process and interact with the world around me.  They are a part of me, but not all of it.  I am also these things:

• librarian
• artist
• Blogger
• Book reviewer
• Lego builder
• designer
• problem solver
• trouble shooter
• excellent listener 
• fan of graphic novels
• doer 
• role maker

And a lot of other things that I can't list or name or don't even want to start naming.  

I'm still figuring out some of what that means. And if you don't like it...frankly that's your loss.  I know I've got good ideas, that I'm a good person, and that I mean well.  And I may say stupid things, I may not act or react like you do or how you want me to, but that's ok because I am me.  Meanwhile, I'm going to remember this line from Batman Begins where Alfred Peenyworth says to Bruce Wayne: "Why do we fall sir? So we might learn to pick ourselves up." Not that I've fallen...but I am going to pick myself up again and go on with life.